I had a great week after being released from the hospital. The kids were all away still with camps, it allowed Joanne and I to get into a routine out of the hospital. The best part of course was eating my wife's great cooking rather than hospital food. I was also able to start with some mild exercise and stretching as I begin to rebuild.
I had two follow-up visits to the clinic and both went well with no need for any additional fluids to on-board. My mouth and throat were the last sore spots remaining from the chemo treatments, they are healing slowly. I'll continue to visit the clinic 2-3 times per week with the next big milestone coming up at Day T + 30 when they'll take another marrow biopsy.
All the kids will be back today, really looking forward to seeing them and being together for the fourth.
Brian, thank you so much for sharing your story. If you don't mind sharing a little more.... did your leukemia start as MDS? Do you have chromosomal abnormalities? I have my second bone marrow biopsy this Thursday July 10th. I have LGL with evolving MDS. This bone marrow biopsy will tell us the next step s I have to take. I live in Florida (Daytona Beach) . I'm 47 and I ran with Biggest Losers in the Tampa race. I am hooked on OCR! I just need to get healthy enough to run again.
ReplyDeleteStephanie Ross
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